02/10/12

Alport Info Day, Sat December 1st

The 1st UK national Alport Family Day will be held in London on Saturday December 1st.  More info here.

It will also be the official launch day for the UK Alport Registry, using the infrastructure supported by Kidney Research UK and the British Kidney Patients Association.  This is part of the RA and BAPN initiative for rare kidney diseases.

More about the Alport group here – contact neil.turner@ed.ac.uk for more info.  Please direct all interested patients to Susie Gear at meetings@alport.info