Virtual HNF1B support day

The University of Exeter Medical School invite you to join them for their first HNF1B virtual support day, on Saturday 15th May 2021.  

HNF1B is a gene involved in the development of several organs including the kidneys, pancreas, reproductive tract and liver. People with a change in the HNF1B gene can have a variety of problems associated with these organs. This is sometimes called the renal cysts and diabetes syndrome (RCAD) because these are the most common features.

This event, hosted by Dr Coralie Bingham and Dr Rhian Clissold - Consultant nephrologists at Royal Devon and Exeter NHS Foundation Trust, aims to provide information about this rare disorder to patients, their families and carers and to clinicians.

There will be presentations by experts in different aspects of the condition with the chance to ask questions. There will also be an opportunity to meet up in a virtual environment with other attendees. The programme can be viewed here.  

  • A chance to meet others and share experiences
  • Talks from a panel of experts with the opportunity to ask all your questions
  • Help develop a UK patient support network
  • Free

Registration for the virtual HNF1B support day event is now open. You can register here


May 15th, 2021 10:45 AM through  3:45 PM


NICE accredited clinical practice guidelines 

Available here

22nd Annual Report

Analyses about care provided to patients at UK renal centres.

Read the report


A report on the nationwide collection of AKI warning test scores. 

Read the report