Consultations
Information regarding consultations to which the Renal Association is asked to respond
As a national specialist society representing nephrology in the UK, the Renal Association is frequently asked to nominate experts to respond to consultations. These requests require very significant time and effort from those who agree to reply on behalf of the RA, and invariably the response is requested within a very short time scale. We are extremely grateful to all those who have provided their expert opinion in the past and also the future!
We list below all the consultations (from 2014 onwards) on which the RA has been asked to comment on your behalf, and the details of the person who has kindly agreed to prepare the response. We do our best to publicise such requests via enews and Twitter when time allows -please feel free to submit any comments to the nominated responder (via renal@renal.org when no individual email address has been given) for any consultations before the closing date.
The list below shows the name of the body requesting a response, the title of the consultation document, and the details of the person who has agreed to the request from the RA to reply on behalf of the RA.
Links to the final response submitted by the RA are also provided for information.
| Consultations Still Open | RA Consultations | Closing Date |
|---|---|---|
| NICE | Diagnostics Assessment Programme – the NephroCheck Test System Marlies Ostermann | 03/04/2019 |
| NICE | Draft guideline on hypertension in pregnancy: diagnosis and management (update) Dr Matt Hall | 13/03/2019 |
| NICE | NICE guideline on Intrapartum care for high risk women Dr Kate Bramham | 23/10/2018 |
| NICE | The NGAL test Dr Nick Selby, Dr Lu Forni, Dr John Prowle & Dr Chris Laing | TBC |
| NICE | Lesinurad in combination with a xanthine oxidase inhibitor for chronic hyperuricaemia in gout [ID761] John Sayer | Delayed |
| Responses Submitted | Date Submitted | |
| NHS England | Policy statement development for: Rituximab for the treatment of Focal Segmental Glomerulosclerosis in Adults Dr Ruth Pepper | 27/12/2018 |
| NICE | Sodium zirconium cyclosilicate for treating hyperkalaemia [ID1293] Technology Appraisal Prof Sunil Bhandari | 19/11/2018 |
| NICE | Patiromer for treating hyperkalaemia [ID877] Technology Appraisal Prof Sunil Bhandari | 19/11/2018 |
| NICE | NICE scoping workshop – NICE guideline on: Kidney Suite Prof Laurie Tomlinson (CKD) Dr Suren Kanagasundaram (AKI) | 11/01/2019 |
| NICE | NICE Scoping Workshop: Diagnostics Assessment Programme – Point-of-care creatinine tests to assess kidney function before contrast-enhanced imaging Dr Marie Condon | 25/09/2018 |
| NICE | Topol Review Dr Tom Oates | 15/08/2018 |
| NICE | NICE Draft guideline consultation – Renal and ureteric stones: assessment and management Prof John Sayer | 29/08/2018 |
| NHS England | Trientine for Wilson Disease: Draft Policy for Stakeholder Testing No response submitted by the RA | 31/07/2018 |
| NICE | NICE Update to Developing NICE guidelines: the manual Dr Andrew Mooney | 25/06/2018 |
| NICE | NICE Proposed Single Technology Appraisal Tocilizumab for treating systemic sclerosis ID1396 Draft Scope Consultation & Workshop Invitation Prof Alan Salama | 13/06/2018 |
| NICE | NICE Draft guideline on renal replacement therapy Prof Martin Wilkie | 21/05/2018 |
| NICE | NICE guideline PH46 BMI: preventing ill health and premature death in black, Asian and other minority ethnic groups (2013) Dr Indranil Dasgupta | 28/03/2018 |
| NICE | Hyperkalaemia - patiromer and sodium zirconium cyclosilicate ID1293 Prof Sunil Bhandari | 31/03/2018 |
| BTS | BTS Hepatitis B and Solid Organ Transplantation Dr Richard Borrows | 28/02/2018 |
| NHS ENGLAND | Establishing Current Research Priorities in Specialised Care Prof Phil Kalra | 27/02/2018 |
| NICE | DH consultation on new opt-out system for organ and tissue donation Prof Paul Cockwell and Prof Alan Salama | 20/02/2018 |
| Use of Organs from Hepatitis C Viraemic Donors in Hepatitis C Negative Recipients Prof Nithya Krishnan | 05/02/2018 | |
| NICE | Patiromer for treating hyperkalaemia [ID877] Prof Sunil Bhandari | 19/12/2017 |
| NICE | Management of common infections Dr Chris Dudley | |
| NICE | Chronic kidney disease (update) quality standard topic engagement exercise Dr Paul Cockwell | 21/08/2017 |
| NICE | Etelcalcetide For Treating Secondary Hyperparathyroidism Dr Helen Eddington | 24/03/2017 |
| NICE | Chronic Kidney Disease - Consultation On Draft Quality Standard Prof Paul Cockwell | 28/03/2017 |
| NICE | De-Identification Data Items James Medcalf, Fergus Caskey & Afzal Chaudhry | 09/12/2016 |
| NICE | Response submitted on Nice RRT Scope Renal Association | 01/09/2016 |
| NHS Improvement | Response Submitted on: National tariff: policy proposals for 2017/18 and 2018/19 John Bradley, Alison Brown, Donal O'Donoghue, Graham Lipkin | 25/8/2016 |
| Royal College of Physicians | Proposal for consideration by the Prescribed Specialised Services Advisory Group (PSSAG) Here is the response submittedby the RCP, to which the Renal Association contributed | |
| NHS England | Specialised Services clinical commissioning policies and service specification - 7th Wave - Renal Transplantation Service (Adults) Alastair Hutchison | 10/04/2016 |
| NHS England | National Patient Reported Outcome Measures Programme Fergus Caskey | 18/3/2016 |
| NHS England | Specialised Services clinical commissioning policies and service specification - 2nd Wave Indranil Dasgupta | 06/3/2016 |
| NICE | Consultation on potential new indicators Donal O'Donoghue | 26/02/2016 |
| NICE | Improving supportive and palliative care in adults Andrew Mooney | 27/01/2016 |
| Royal College of Physicians | Medical care: core section one: Designing high quality services” (draft) | 03/11/2015 |
| The Renal Association | NICE draft guideline consultation - Care of the Dying Adult Andrew Mooney | 02/09/2015 |
| Think Kidneys | Minimum Care Bundle for patients with AKI in Hospital Mark Brady | 04/09/2015 |
| NICE | Transplant Immunosuppression Graham Lipkin & Gareth Jones | |
| NICE | Evidence Search Process and Methods Manual consultation Andy Lewington | 14/10/2015 |
| UK Renal Association | Process of credentialing to enhance medical regulation and patient protection Sue Carr | 11/09/2015 |
| NICE | Matthew Olley | |
| UK Renal Association | The EoLC Partnership Edwina Brown | 22/07/2015 |
| NHS England | Specialised Services - Policy and Specification Consultation | 30/04/15 |
| NICE | Implanting a baroreceptor stimulation device for resistant hypertension[P1180] Indranil Dasgupta | 25/02/15 |
| NHS England | Transferring services from NHS England to CCGs - Seeks views on moving responsibility for renal dialysis services and morbid obesity surgery services from NHS England to CCGs Graham Lipkin | 09/01/2015 |
| NICE | NICE Anaemia Guideline draft update Kidney Research UK final Jan 2015 Ian MacDougall | 08/01/2015 |
| NHS England | A consultation on arrangements for the transfer of commissioning responsibility from NHS England to clinical commissioning Graham Lipkin | 12/01/2015 |
| RCP | Consultant physicians working with patients (working party,TBA) Paul Warwicker & Clara Day | 09/01/2015 |
| NHS England | Draft Service Specifications for AKI Chris Laing & Andy Lewington | 21/05/2014 |
| NHS England | Draft Service Specifications for Peritoneal Dialysis Simon Davies & Edwina Brown | 21/05/2014 |
| NHS England | Draft Service Specifications : Preparation for ESKD Paul Cockwell | 21/05/2014 |
| NHS England | Draft Service Specifications : in centre HD Clara Day | 21/05/2014 |
| NHS England | Draft Service Specifications : Home HD Clara Day | 21/05/2014 |
| NICE | Draft acute kidney injury quality standard Chris Laing | 27/06/2014 |
| Monitor | Proposed draft tariff prices for 2015/16: RA Response to Monitor, Appendix 1 Graham Lipkin | 15/08/2014 |
| NICE | Quality standard for IV fluid therapy for adults in hospital Andy Lewington | 30/08/2014 |
| NICE | Highly Specialised Technology: Eculizumab for treating atypical haemolytic uraemic syndrome (aHUS) [ID703] Evaluation consultation document 2 Moin Saleem | 25/09/2014 |
| Gold Standards Framework RCGP | GSF Prognostic Indicator Guidance GSF Feedback, NICE scope Edwina Brown | 12/09/2014 |
| NICE | Immunosuppressive therapy for kidney transplantation in adults (review of technology appraisal guidance 85) [ID456] Gareth Jones | 08/10/2014 |
| NICE | Single Technology Appraisal (STA) :Tolvaptan for treating autosomal dominant polycystic kidney disease [ID652] Albert Ong & Lukas Foggensteiner | 17/12/2014 |