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Consultations

Information regarding consultations to which the Renal Association is asked to respond

As a national specialist society representing nephrology in the UK, the Renal Association is frequently asked to nominate experts to respond to consultations. These requests require very significant time and effort from those who agree to reply on behalf of the RA, and invariably the response is requested within a very short time scale. We are extremely grateful to all those who have provided their expert opinion in the past and also the future!

We list below all the consultations (from 2014 onwards) on which the RA has been asked to comment on your behalf, and the details of the person who has kindly agreed to prepare the response. We do our best to publicise such requests via enews and Twitter when time allows -please feel free to submit any comments to the nominated responder (via renal@renal.org when no individual email address has been given) for any consultations before the closing date.

The list below shows the name of the body requesting a response, the title of the consultation document, and the details of the person who has agreed to the request from the RA to reply on behalf of the RA.

Links to the final response submitted by the RA are also provided for information.

Consultations Still OpenRA ConsultationsClosing Date
NICENICE guideline on Intrapartum care for high risk women

Dr Kate Bramham
23/10/2018
NICEThe NGAL test

Dr Nick Selby, Dr Lu Forni, Dr John Prowle & Dr Chris Laing
TBC
NICE Lesinurad in combination with a xanthine oxidase inhibitor for chronic hyperuricaemia in gout [ID761]

John Sayer
Delayed
Responses SubmittedDate Submitted
NICESodium zirconium cyclosilicate for treating hyperkalaemia [ID1293] Technology Appraisal

Prof Sunil Bhandari
19/11/2018
NICEPatiromer for treating hyperkalaemia [ID877] Technology Appraisal

Prof Sunil Bhandari
19/11/2018
NICENICE scoping workshop – NICE guideline on: Kidney Suite

Prof Laurie Tomlinson (CKD) Dr Suren Kanagasundaram (AKI)
11/01/2019
NICENICE Scoping Workshop: Diagnostics Assessment Programme – Point-of-care creatinine tests to assess kidney function before contrast-enhanced imaging

Dr Marie Condon
25/09/2018
NICETopol Review

Dr Tom Oates
15/08/2018
NICENICE Draft guideline consultation – Renal and ureteric stones: assessment and management

Prof John Sayer
29/08/2018
NHS EnglandTrientine for Wilson Disease: Draft Policy for Stakeholder Testing

No response submitted by the RA
31/07/2018
NICENICE Update to Developing NICE guidelines: the manual

Dr Andrew Mooney
25/06/2018
NICENICE Proposed Single Technology Appraisal
Tocilizumab for treating systemic sclerosis ID1396
Draft Scope Consultation & Workshop Invitation


Prof Alan Salama
13/06/2018
NICENICE Draft guideline on renal replacement therapy

Prof Martin Wilkie
21/05/2018
NICE NICE guideline PH46 BMI: preventing ill health and premature death in black, Asian and other minority ethnic groups (2013)

Dr Indranil Dasgupta
28/03/2018
NICE Hyperkalaemia - patiromer and sodium zirconium cyclosilicate ID1293

Prof Sunil Bhandari
31/03/2018
BTSBTS Hepatitis B and Solid Organ Transplantation

Dr Richard Borrows
28/02/2018
NHS ENGLAND Establishing Current Research Priorities in Specialised Care

Prof Phil Kalra
27/02/2018
NICEDH consultation on new opt-out system for organ and tissue donation

Prof Paul Cockwell and Prof Alan Salama
20/02/2018
Use of Organs from Hepatitis C Viraemic Donors in Hepatitis C Negative Recipients
Prof Nithya Krishnan
05/02/2018
NICE Patiromer for treating hyperkalaemia [ID877]

Prof Sunil Bhandari
19/12/2017
NICEManagement of common infections

Dr Chris Dudley
NICEChronic kidney disease (update) quality standard topic engagement exercise
Dr Paul Cockwell
21/08/2017
NICEEtelcalcetide For Treating Secondary Hyperparathyroidism

Dr Helen Eddington
24/03/2017
NICEChronic Kidney Disease - Consultation On Draft Quality Standard

Prof Paul Cockwell
28/03/2017
NICEDe-Identification Data Items

James Medcalf, Fergus Caskey & Afzal Chaudhry
09/12/2016
NICEResponse submitted on Nice RRT Scope

Renal Association
01/09/2016
NHS ImprovementResponse Submitted on: National tariff: policy proposals for 2017/18 and 2018/19

John Bradley, Alison Brown,
Donal O'Donoghue, Graham Lipkin
25/8/2016
Royal College of PhysiciansProposal for consideration by the Prescribed Specialised Services Advisory Group (PSSAG)

Here is the response submittedby the RCP, to which the Renal Association contributed
NHS EnglandSpecialised Services clinical commissioning policies and service specification - 7th Wave - Renal Transplantation Service (Adults)

Alastair Hutchison
10/04/2016
NHS EnglandNational Patient Reported Outcome Measures Programme

Fergus Caskey
18/3/2016
NHS EnglandSpecialised Services clinical commissioning policies and service specification - 2nd Wave

Indranil Dasgupta
06/3/2016
NICEConsultation on potential new indicators

Donal O'Donoghue
26/02/2016
NICEImproving supportive and palliative care in adults

Andrew Mooney
27/01/2016
Royal College of PhysiciansMedical care: core section one: Designing high quality services” (draft)03/11/2015
The Renal AssociationNICE draft guideline consultation - Care of the Dying Adult

Andrew Mooney
02/09/2015
Think KidneysMinimum Care Bundle for patients with AKI in Hospital

Mark Brady
04/09/2015
NICETransplant Immunosuppression

Graham Lipkin & Gareth Jones
NICEEvidence Search Process and Methods Manual consultation

Andy Lewington
14/10/2015
UK Renal AssociationProcess of credentialing to enhance medical regulation and patient protection

Sue Carr
11/09/2015
NICEMatthew Olley
UK Renal AssociationThe EoLC Partnership

Edwina Brown
22/07/2015
NHS EnglandSpecialised Services - Policy and Specification Consultation30/04/15
NICEImplanting a baroreceptor stimulation device for resistant hypertension[P1180]

Indranil Dasgupta
25/02/15
NHS EnglandTransferring services from NHS England to CCGs - Seeks views on moving responsibility for renal dialysis services and morbid obesity surgery services from NHS England to CCGs

Graham Lipkin
09/01/2015
NICENICE Anaemia Guideline draft update Kidney Research UK final Jan 2015

Ian MacDougall
08/01/2015
NHS EnglandA consultation on arrangements for the transfer of commissioning responsibility from NHS England to clinical commissioning

Graham Lipkin
12/01/2015
RCPConsultant physicians working with patients (working party,TBA)

Paul Warwicker & Clara Day
09/01/2015
NHS EnglandDraft Service Specifications for AKI

Chris Laing & Andy Lewington
21/05/2014
NHS EnglandDraft Service Specifications for Peritoneal Dialysis

Simon Davies & Edwina Brown
21/05/2014
NHS EnglandDraft Service Specifications : Preparation for ESKD

Paul Cockwell
21/05/2014
NHS EnglandDraft Service Specifications : in centre HD

Clara Day
21/05/2014
NHS EnglandDraft Service Specifications : Home HD

Clara Day
21/05/2014
NICEDraft acute kidney injury quality standard

Chris Laing
27/06/2014
MonitorProposed draft tariff prices for 2015/16: RA Response to Monitor, Appendix 1

Graham Lipkin
15/08/2014
NICEQuality standard for IV fluid therapy for adults in hospital

Andy Lewington
30/08/2014
NICEHighly Specialised Technology: Eculizumab for treating atypical haemolytic uraemic syndrome (aHUS) [ID703] Evaluation consultation document 2

Moin Saleem
25/09/2014
Gold Standards Framework RCGPGSF Prognostic Indicator Guidance GSF Feedback, NICE scope

Edwina Brown
12/09/2014
NICEImmunosuppressive therapy for kidney transplantation in adults (review of technology appraisal guidance 85) [ID456]

Gareth Jones
08/10/2014
NICESingle Technology Appraisal (STA) :Tolvaptan for treating autosomal dominant polycystic kidney disease [ID652]

Albert Ong & Lukas Foggensteiner
17/12/2014