Patient Information and Leaflets arrow_drop_down

The Renal Association’s Patient Information Sub-committee aims to develop and maintain a high quality patient information resource for use by kidney doctors, patients, families and carers in the UK. The work is carried out in partnership with Kidney Care UK, the UK’s leading kidney patient support charity.


Current Activity

More updates coming soon.

Patient Information Leaflets

Online versions of the current leaflets can be found below. Printable versions are also available. Please feel free to download and use the leaflets in your Unit. You can even add your Trusts logo if you would like to personalise the leaflets. To order printed copies for your unit please contact Kidney Care UK –

Acute kidney injury  with thanks to the Think Kidneys team

A healthy diet and lifestyle for your kidneys – written by the Renal Nutrition Group


Cancer risk in patients with kidney disease

Capacity and decision making in chronic kidney disease – with thanks to the Renal and Palliative Care teams at the Royal Free Hospital, London

Choosing not to have dialysis

Choosing to stop dialysis

Chronic kidney disease (CKD)

Dealing with a diagnosis of kidney disease

Dialysis away from home

Emotional resilience

Employment Rights

Exercise and keeping fit

Fluid balance – written by the Renal Nutrition Group

Fluid balance – Welsh – with thanks to the Translation Service at Betsi Cadwaladr University Health Board

Frequently asked questions about kidney transplantation


Haemodialysis access with an arteriovenous fistula – with thanks to the Vascular Access Society of Britain and Ireland (VASBI) 

Having a healthy sex life when you have chronic kidney disease

High potassium levels (hyperkalaemia) and kidney disease

How can a renal dietitian help me? – written by the Renal Nutrition Group

Itching and Chronic Kidney Disease.

Kidney biopsy

Kidney myth busters

Living kidney donation

Lowering your potassium levels – written by the Renal Nutrition Group

Medicines commonly taken by people after a transplant or with an autoimmune disease

Medicines for anaemia and mineral bone disease

Medicines for chronic kidney disease

Medicines for high blood pressure

Medicines for people having dialysis


Mineral bone disease

Over-the-counter medicines

Peritoneal dialysis

Pregnancy and chronic kidney disease – written by the pregnancy and CKD rare disease group

Removing your temporary haemodialysis catheter (vascath)

Restless Leg Syndrome

Sexual health and contraception when you have chronic kidney disease

Shared Haemodialysis Care

Summary leaflet – aimed at healthcare professionals to highlight the different resources available via Kidney Care UK

Travel medicines

Welfare benefits

Women’s Health

Patient Editorial Board

The Renal Association/Kidney Care UK Patient Editorial Board are a vital component of the Patient Information Leaflet project. Their remit is to:

  • Review draft leaflets
  • Provide suggestions for future topics
  • Raise awareness of the project among fellow kidney patients

The expertise of the following individuals is gratefully acknowledged:

  • Sue Lyon
  • Keith Pennington

Clinical Sub-Committee Membership

  • Matt Bottomley, Renal Registrar
  • Paul Bristow, Kidney Care UK Director of Marketing and Communication
  • Wendy Brown, Renal Nursing specialist
  • Melanie Dillon, Kidney Care UK Patient Information Coordinator
  • Jan Dudley, Vice Chair & Paediatric Nephrologist
  • Katie Durman, Renal Dietitian
  • Fiona Duthie, Renal Registrar
  • Louise Hankinson, Clinical Psychologist
  • Ian Logan, Consultant Nephrologist
  • Fiona Loud, Kidney Care UK Policy Director
  • Lauren Mercer, Kidney Care UK Marketing & Communications Officer
  • Clare Morlidge, Renal Pharmacist
  • Alexandra Rankin, Adult Consultant Nephrologist
  • Rebecca Suckling Chair & Adult Consultant Nephrologist
  • Ros Tibbles, Service Improvement Nurse
  • Liz Wallin, Renal Registrar
  • Jayne Woodhouse, Advanced Nurse Practitioner

Renal Unit Authors & Reviewers

The expertise of the following individuals is gratefully acknowledged:

  • Sumoyee Basu, Renal Registrar, Guy’s  &  St Thomas’ NHS Foundation Trust
  • Anna Forbes, Renal SpR, Frimley Park
  • Keith Gillis, Renal Registrar, Queen Elizabeth University Hospital, Glasgow
  • Gerald Glancey, Consultant Nephrologist, Ipswich Hospital NHS Trust
  • Rachel Hilton, Consultant Nephrologist, Guy’s  &  St Thomas’ NHS Foundation Trust
  • Tasnim Momoniat, Renal Registrar, Bradford
  • Jonathan Murray, Consultant Nephrologist, South Tees NHS Foundation Trust
  • Hugh Rayner, Consultant Nephrologist, Birmingham Heartlands Hospital,
  • Wendy Robinson, Specialist Senior Renal Social Worker, Hull
  • Tracey Salter, Consultant Nephrologist, Epsom and St. Helier University Hospitals


Melanie Dillon, Kidney Care UK Patient Information Coordinator –


Guidelines for Authors

Terms of Reference

Information Standard

The Information Standard Scheme came to an end on the 31st July 2019. This information is for reference only.

The process for producing patient information on this site is accredited by the  Information StandardThis highlights our commitment to produce high-quality, evidence-based information for both patients and clinicians.

The Patient Information Committee shall hold responsibility for the accuracy of the information they publish and neither the Scheme Operator nor the Scheme Owner shall have any responsibility whatsoever for costs, losses or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on this website on behalf of the Patient Information

Further details can be found in our Information Standard Principles, the Patient Information Protocol and the Renal Association’s Information Production System, which explains the review process that each leaflet goes through before it is published.

In order to maintain relevance and ensure accuracy, the information on this site will be reviewed every year, with amendments and updates made as required.

Additional Sources of Information

Kidney Care UK (formerly known as The British Kidney Patient Association) was established in 1975 and works to improve the quality of life for adults and children with kidney disease. Kidney Care UK provides information and advice. They also give grants to help patients and families with kidney disease for the purpose of covering the costs of domestic bills, hospital travel, education and holidays during times of financial hardship. Kidney Care UK also gives financial support to kidney units throughout the UK to help improve kidney services and patient care.


 InfoKid provides information for parents and carers about kidney conditions in babies, children and young people. They provide information about conditions, tests, treatments and supporting information – on screen or in downloadable leaflets.


RareRenal provides patient and clinician information on rare kidney diseases that are eligible for inclusion in the RaDaR rare disease registry. The site also contains information about nationally appointed expert groups (Rare Disease Groups; RDGs) and advertises patient information days and social media groups concerned with rare kidney diseases.


Think Kidneys increases awareness of the prevention, detection and treatment of acute kidney injury(AKI) for health and care professionals. Their website includes information for patients and members of the public.