Patient Information and Leaflets arrow_drop_down

The Patient Information Sub-committee aims to develop and maintain a high quality patient information resource for use by kidney doctors, patients, families and carers in the UK. The work is carried out in partnership with Kidney Care UK

Current Activity

We are currently looking for reviewers for our next two leaflets:

We would be grateful for your feedback by Friday 30th November to Melanie.Dillon@RenalRegistry.nhs.uk.

Our most recent leaflets are on:

Suggests for future topics are welcome. See below for contact details.

Patient Information Leaflets

Online versions of the current leaflets can be found below. Printable versions are also available.

Please feel free to download and use the leaflets in your Unit. You can even add your Trusts logo if you would like to personalise the leaflets. To order printed copies for your unit please contact Kidney Care UK – info@kidneycareuk.org

Acute Kidney Injury  with thanks to the Think Kidneys team

A Healthy Diet and Lifestyle for Your Kidneys – written by the Renal Nutrition Group

Capacity and decision making in chronic kidney disease – with thanks to the Renal and Palliative Care teams at the Royal Free Hospital, London

Choosing Not to Have Dialysis

Choosing to Stop Dialysis

Chronic Kidney Disease (CKD)

Dealing with a Diagnosis of Kidney Disease

Dialysis Away From Home

Emotional Resilience

Exercise and Keeping Fit

Fluid Balance – written by the Renal Nutrition Group

Fluid Balance – Welsh – with thanks to the Translation Service at Betsi Cadwaladr University Health Board

Frequently Asked Questions about Kidney Transplantation

Haemodialysis

Having a healthy sex life when you have Chronic Kidney Disease

How can a Renal Dietitian help me? – written by the Renal Nutrition Group

Kidney Biopsy

Kidney Myth Busters

Living Kidney Donation

Lowering your potassium levels – written by the Renal Nutrition Group

Medicines commonly taken by people after a Transplant or with an Autoimmune Disease

Medicines for Anaemia and Mineral Bone Disease

Medicines for Chronic Kidney Disease

Medicines for High Blood Pressure

Medicines for people having Dialysis

Mindfulness

Mineral Bone Disease

Over-the-counter Medicines

Peritoneal Dialysis

Pregnancy and Chronic Kidney Disease – written by the Pregnancy and CKD Rare Disease Group

Sexual Health and Contraception when you have Chronic Kidney Disease

Travel Medicines

Welfare Benefits

Patient Editorial Board

The Renal Association/Kidney Care UK Patient Editorial Board are a vital component of the Patient Information Leaflet project. Their remit is to:

  • Review draft leaflets
  • Provide suggestions for future topics
  • Raise awareness of the project among fellow kidney patients

The expertise of the following individuals is gratefully acknowledged:

  • Sue Lyon
  • Keith Pennington

Clinical Sub-Committee Membership

  • Matt Bottomley, Renal Registrar
  • Paul Bristow, Kidney Care UK Director of Marketing and Communication
  • Claire Brooker, Renal Deititian
  • Wendy Brown, Renal Nursing specialist
  • Clare Castledine, Adult Consultant Nephrologist
  • Melanie Dillon, Secretariat and Administration Support
  • Jan Dudley, Vice Chair & Paediatric Nephrologist
  • Fiona Duthie, Renal Registrar
  • Nevine El-Sherbini, Renal Deititian
  • Louise Hankinson, Clinical Psychologist
  • Fiona Loud, Kidney Care UK Policy Director
  • Clare Morlidge, Renal Pharmacist
  • Alexandra Rankin, Adult Consultant Nephrologist
  • Rebecca Suckling Chair & Adult Consultant Nephrologist
  • Liz Wallin, Renal Registrar

Renal Unit Authors & Reviewers

The expertise of the following individuals is gratefully acknowledged:

  • Keith Gillis, Renal Registrar, Queen Elizabeth University Hospital, Glasgow
  • Gerald Glancey, Consultant Nephrologist, Ipswich Hospital NHS Trust
  • Rachel Hilton, Consultant Nephrologist, Guy’s  &  St Thomas’ NHS Foundation Trust
  • Tasnim Momoniat, Renal Registrar, Bradford
  • Jonathan Murray, Consultant Nephrologist, South Tees NHS Foundation Trust
  • Wendy Robinson, Specialist Senior Renal Social Worker, Hull
  • Jayne Woodhouse, Advanced Nurse Practitioner, Churchill Hospital, Oxford

Contacts

Melanie Dillon – Operations Manager – Melanie.Dillon@renalregistry.nhs.uk

Documentation

Guidelines for Authors

Terms of Reference

Additional Sources of Information

Kidney Care UK (formerly known as The British Kidney Patient Association) was established in 1975 and works to improve the quality of life for adults and children with kidney disease. Kidney Care UK provides information and advice. They also give grants to help patients and families with kidney disease for the purpose of covering the costs of domestic bills, hospital travel, education and holidays during times of financial hardship. Kidney Care UK also gives financial support to kidney units throughout the UK to help improve kidney services and patient care.

 

 InfoKid provides information for parents and carers about kidney conditions in babies, children and young people. They provide information about conditions, tests, treatments and supporting information – on screen or in downloadable leaflets.

 

RareRenal provides patient and clinician information on rare kidney diseases that are eligible for inclusion in the RaDaR rare disease registry. The site also contains information about nationally appointed expert groups (Rare Disease Groups; RDGs) and advertises patient information days and social media groups concerned with rare kidney diseases.

 

Think Kidneys increases awareness of the prevention, detection and treatment of acute kidney injury(AKI) for health and care professionals. Their website includes information for patients and members of the public.