Patient council arrow_drop_down

Are you a patient, relative or carer of someone with kidney disease?

The patient council needs you!

The Renal Association patient council helps to connect us and the work we are doing with people whose lives are directly affected by kidney disease. Your current experiences, views and opinions on kidney services can influence services now and in the future as we work with the renal centres, researchers and many others.

The Patient council meets quarterly, usually in Birmingham, and at the meetings we do a variety of things.

Our role includes:

  • Getting involved in new programmes of work that aim to improve the experience and outcomes for patients
  • Helping to produce new patient information – leaflets, reports and posters
  • Supporting the RA on issues relating to information governance – how data is managed and used, and patient consent
  • Discussing new research and survey proposals and how the data from the kidney centres is being used
  • Using the opportunity to encourage discussion between patients and clinicians to promote patient involvement in kidney centres as well as regionally and nationally.

If you would like to have an impact on kidney care and speak for yourself and others, we would like to hear from you.

Patient council members are unpaid but an allowance is available for attendance at meetings, plus travelling costs. Any training needs for this role will be provided with on-going support to help you take on these responsibilities.

 

To find out more or request an application pack please contact Jen Barwell:

Email: jennifer.barwell@renalregistry.nhs.uk

Tel: 0117 4148150

 

Current members:

Chairperson(s):

Fiona Loud, Representative, Kidney Care UK, fiona.loud@kidneycareuk.org

Members:

Hakeem Adedoja, patient representative
Claire Corps, patient representative
Ron Cullen, Chief Executive, The Renal Association
Katharine Evans, Research Development Manager, The Renal Association
Jack Husband, patient representative
Ewan MacLean, Scottish patient representative
James Medcalf, Medical Director, UK Renal Registry
Rhodri Pyart, Clinical Fellow, UK Renal Registry
Guy Richards, patient representative
Sue Lyon, patient representative
Tracey Rose, patient representative
Keith Bucknall, patient representative

The Renal Association and its patient council would like to acknowledge the contribution our late member Denny Abbott made. She was a founder member of the council in 2014 and a great believer in the power of data for improvement in patient care. She gave freely of her time and expertise as a patient, despite her health challenges and we miss her and thank her for all her authoritative, consistent contributions to the group from the start.