The UK Renal Registry is a resource for the development of patient care in renal disease. It provides a focus for the collection and analysis of standardised data relating to the incidence, clinical management and outcome of renal disease.
It was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society.
On the Renal Registry website you can find links to current and previous Renal Registry reports and slidesets, the Registry data portal and atlas, and information about the Registry itself.
Patient and clinician information on the rare renal diseases covered by RaDaR – the national registry for rare kidney disease.
Kidney Research UK
The Renal Association works closely with Kidney Research UK in supporting research.
Kidney disease is a silent killer. There is no cure. There are three million people in the UK with it right now and the number of people with kidney failure continues to rise.
We are the UK’s leading kidney research charity and we believe that everybody has a right to a life free of kidney disease. We are pioneers in our field. For decades our developments in treatments, better information for patients and raising vital public awareness have been saving lives. Today, our work is more essential than ever. We are Kidney Research UK.
To find out more about the work of Kidney Research UK, including volunteering or fundraising for us, please call 0300 303 1100, visit www.kidneyresearchuk.org or email firstname.lastname@example.org.
Kidney Care UK
The UK’s leading kidney patient support charity – kidneycareuk.org
Members of The Renal Association receive a discount on BMC Nephrology‘s article-processing charge when they provide a discount code (which members can obtain by contacting BMC Nephrology) during the submission process.
Standardised Outcomes in Nephrology
The Renal Association is pleased to endorse SONG outcomes.
From their website; The Standardised Outcomes in Nephrology (SONG) initiative aims to establish a set of core outcomes and outcome measures across the spectrum of kidney disease for trials and other forms of research. The outcomes will be developed based on the shared priorities of patients, caregivers, clinicians, researchers, policy makers, and relevant stakeholders. This will help to ensure that research is reporting outcomes that are meaningful and relevant to patients with kidney disease, their family, and their clinicians; to support decisions about treatment.