09/09/20

Invitation to complete the international SONG-CKD Delphi survey

The international SONG-CKD Delphi survey is now live. You are invited to complete the survey and have your say about what impacts of chronic kidney disease and treatment are important to you. You can complete the survey here.

The aim of this Standardised Outcomes in Nephrology-Chronic Kidney Disease (SONG-CKD) study is to establish a core outcome set for trials in patients with chronic kidney disease and not requiring kidney replacement therapy. Researchers are conducting the study to understand what outcomes are important to patients, caregivers, family members and health professionals for research (clinical trials) in people with chronic kidney disease. This will help to ensure that researchers include outcomes that are relevant and meaningful for making decisions.

Patients receiving dialysis or have received a kidney transplant are welcome to participate and you will be asked to reflect on your past experiences before needing dialysis or transplantation. The Delphi survey includes two rounds and each survey will take about 10 minutes to complete. All participants will receive a copy of the results.

If you are patient, family member, health professional with an interest in chronic kidney disease and would like to have a say about what is important to you,  please click here. Further information can be found on the website, or on their flier.