Monthly Update: Think Kidneys Transforming Particpiation in CKD Programme

Whilst the Transforming Participation in CKD programme is due to end in its current format in December 2017, work has not slowed down for the team.  We are working with all fourteen renal units that have taken part in the programme to review how units can embed, sustain and use patient reported measures; and how renal teams might use interventions to respond to this ‘new’ data.  The review hopes to uncover which processes have worked and which have not; where have been the challenges and where the successes, and to produce recommendations for using patient reported measures to change practice into the future.

Other activity includes travelling to Altnagelvin Renal Unit to run a workshop to introduce the concept of patient reported measures – including activation, outcomes and experience – to the staff, commissioners and patients in the region; continuing a ‘Quality Improvement Study’ within Solihull Satellite Dialysis Unit of Birmingham Heartlands Hospital, and planning for our final board meeting in November 2017.

The programme continues to facilitate workshops and education sessions with renal units to look at the data collected so far, what it means and how renal teams can respond and use it in practice.  We are looking forward to joining the teams in Sheffield and Nottingham this month.

The patient reported experience measure (PREM) for 2017 has now been collected from over 10,000 kidney patients across England and Wales. The UK Renal Registry in partnership with the University of Hertfordshire will analyse the results before circulating them to renal units later this year, and publishing them in report format in January 2018. The report for the 2016 pilot PREM is available to view on the UKRR website.