25/09/19

The patient council needs your patients

Do you know any patients, or their relatives and carers, who would like to be involved in our patient council?

The Renal Association patient council helps to connect us and the work we are doing with people whose lives are directly affected by kidney disease. Your patients’ current experiences, views and opinions on kidney services can influence services now and in the future as we work with the renal centres, researchers and many others.

The patient council meets quarterly, usually in Birmingham, and at the meetings we do a variety of things.

Our role includes:

  • Getting involved in new programmes of work that aim to improve the experience and outcomes for patients
  • Helping to produce new patient information – leaflets, reports and posters
  • Supporting the RA on issues relating to information governance – how data is managed and used, and patient consent
  • Discussing new research and survey proposals and how the data from the kidney centres is being used
  • Using the opportunity to encourage discussion between patients and clinicians to promote patient involvement in kidney centres as well as regionally and nationally.

If your patients would like to have an impact on kidney care, we would like to hear from them.

Patient council members are unpaid but an allowance is available for attendance at meetings, plus travelling costs. Any training needs for this role will be provided with on-going support to help them take on these responsibilities.

Look out for our posters in your renal unit soon.

For more information please contact Jen Barwell.