The Renal Association endorses The SONG-Initiative
The SONG Initiative was launched in 2014 to establish core outcome across the spectrum of chronic kidney disease based on the shared priorities of patients, caregivers and health professionals. A core outcome set is an agreed standardised set of outcomes that should be reported, as a minimum, in all clinical trials in a specific area of health. Trials that consistently report meaningful and relevant outcomes can better inform shared decision-making.
The core outcomes are identified through a validated and transparent methodological framework involving systematic reviews, key informant interviews, focus groups with nominal group technique, and international online Delphi survey, and consensus workshops. Approximately 3000 patients, caregivers, physicians, nurses, and allied health professionals, regulators, funders, researchers, and industry partner from more than 80 countries have been involved in establishing core outcomes. To date, core outcomes have been established for haemodialysis (fatigue, vascular access, cardiovascular disease, mortality), and kidney transplantation (graft health, cardiovascular disease, cancer, infection, life participation, and mortality). SONG core outcomes are endorsed by major professional nephrology societies, including the Renal Association, to support the use of core outcomes in trials.
Currently, the SONG-PD Delphi Panel is open! Patients, caregivers, nephrologists, surgeons, nurses, pharmacists, psychologists, dietitians, researchers, policy makers, industry, and other health professionals with an interest in peritoneal dialysis are welcome to register here.