Information and resources

Information for patients

Getting involved in quality improvement

Involving people with lived experience of kidney disease is important for the success of the Kidney Quality Improvement Partnership. 

Improvement requires the knowledge and insight of those who experience kidney care first hand.

There are many ways you can get involved in our projects and national programme.

Visit the Kidney Patient Involvement Network for:

  • Opportunities currently available to get involved in quality improvement
  • Examples of good practice and case studies
  • Resources, tool-kits, example terms of reference and protocols
  • Support and training for kidney patient and family involvement

Visit the renal association patients’ website to find out more information about how your data are used, how you can opt-out, useful resources, as well as getting involved in the Renal Association Patient Council.

Contact kquip@renalregistry.nhs.uk if you have any questions or would like to speak to someone in our team about getting involved.

Patient experience

Patient experience is a key element of care quality and informs much of the improvement work that KQuIP supports.

Visit the renal associations UK Renal Registry website to find out about the annual Kidney Patient Reported Experience Measure (PREM), to read previous annual PREM reports and to view annual patient experience data via the PREM portal.

We also capture and highlight personal stories, experiences and blogs from people living with kidney disease that you can read here.

Key organisations:

Guidelines

NICE accredited clinical practice guidelines 

Available here

22nd Annual Report

Analyses about care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report