Involving patients in follow–up care: video recording and notes from breakout session
Strategies to optimise remote kidney care
Video recording:
watch the video recording of the breakout room session here.
Notes from the breakout session:
- Shashi Matharu, Patient Advisory Group member, Kidney Care UK. Shashi got involved in fundraising as a child (she has been a kidney patient since childhood). She says that patients are the decision makers, but as a child she felt that doctors spoke to her parents about her care instead of her.
- Language was discussed and Shashi said that, for some people, having a patient instead of a translator at appointments was more beneficial.
- Fiona described the role of Kidney Care UK in developing patient groups, and the importance of being fully representative. They can offer support with development Terms of Reference etc, all of which can help with sustainability.
- For Patient Initiated Follow-up (PIFU), the problems of IT issues was discussed – people struggling to get onto the app lead to DNA video appointments. More than 50% DNA video appointments were related to the process – incorrect information on the letter, or no letter. Getting the comms right is so important. Shashi felt that it could be improved by having one system everywhere.
- Clinician followed up on DNAs – they had a phone call. No patients were discharged during the pandemic for DNA-ing appointments.
- Jasvinder Perihar from the renal transformation team asked if the group would find national guidance on PIFU useful, and asked for volunteers. She can be contacted directly by email – j.perihar1@nhs.net
