My renal care: video recording and notes from breakout session
Strategies to optimise remote kidney care
Video recording:
watch the video recording of the breakout room session here.
Notes from the breakout session:
Antonia – "Governance and who owns a data is an issue with Apps – who owns that with your App? What if you have missing blood tests, how are you going to address that?"
Nick – "The Trust owns the data. Series of standards. Any app goes through IT tool kit and so many standards we had to go through. The data inputted through the App comes through patient or us, once in the app, the trust has ownership. If patient is abroad – the results then go through to us as long as patient tells us"
Rob - "We have access to all results. If a patient s having tests at GP we can see these, patients can press the button saying they had test and an email gets sent to us and we then check where and results. We built up a database on the App with all results, so means we have graph of results and anything that looks off we flag"
Rob – "Patient view is good but you can look at results but can’t action them. With us you can press the button to help and there is commentary with us ‘don’t worry about that it’s because of so and so… please check in a week etc.’ which reassures patients"
Lauren – "Difference between carrying appointments in traditional way/ f2f vs app – how did that go, any challenges?"
Rob – "Say we have 10 patient slots in clinic; we have space for some of these in App. We have put more people in the App which uses up more free time in clinics. Consultation clinic appointment or remote clinic appointment. We have integrated how the platform works so there isn’t necessarily added work. E.g book in for patient review in 3 months’ time, with an additional blood test 5 days prior, this can be booked via App"
Angela – "What are your thoughts on holistic care and whether psychology changes/ breakdowns can be picked up"
Rob – "It doesn’t address those issues very well. Certain patients will need this but the vast won’t. We will make sure there is some contact nd schedule the occasional f2f to see them in person to know how they are. We hope patients phone up or speak to GP that they are struggling"
Nick – "I am very much into remote and then booking 1 or 2 f2f. Those using f2f still use the App. Kidney doctors establish relationships takes place in the early days f2f only. I hope however patients can use the App for help if they were in distress or again speak tous. We know this tool is not perfect"
Rob – "Earlier relapse I couldn’t remember what happened but thanks to me commenting on the record on the App, I could go back remember what happened. The app works for me and communication has been good"
Ed – "Total number of contacts vs total number of interactions"
Nick – "Found if you are someone who is someone having lots of contact majority of appointment will be remote/ replaced by the app. New symptoms will go back to f2f. micromanagement – patients monitor their own blood pressure etc. we book these in for monthly remote"
