RaDaR Registry

The National Registry of Rare Kidney Diseases (RaDaR) is a Renal Association initiative designed to pull together information from patients with certain rare kidney diseases.

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This will give a much better understanding of how these illnesses affect people. It will also speed up research. Contact RaDaR using the contact form.

    • Access to your clinical data online via Patient View, an online system which records blood and urine results, medications and clinic letters.

    • Ability to be contacted about future potential research studies or patient information events

    • Contribute to the increase in knowledge about your condition

      Please tell your kidney doctor if you would to join RaDaR and they will register you

    • Portfolio study – Renal, co-adopted by Child Health
    • UK-wide Ethics and classed as a research registry so no additional HRA approvals required
    • Share knowledge with other colleagues
    • Access to genetic testing for selected conditions

      We are very interested in hearing from any clinicians who may like to use RaDaR as part of a research study or clinical trial. Please Contact for details.

For all details about recruitment please go to Recruitment Resources

Please click here is go to RaDaR research page

 

Users with an active account and NHS network can access the RaDaR Database HERE

Guidelines

NICE accredited clinical practice guidelines 

Available here

22nd Annual Report

Analyses about care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report