PAM and PROM data

PAM is a specific measure of a patient's knowledge, skills and confidence in self-management, which is known as patient activation. It is calculated depending on the responses to 13 questions using an algorithm and the patient is then given an activation ‘level’ (1, 2, 3 or 4) that can be used to tailor information or care.

PROM is a term used for outcomes that are reported by the patients themselves,without a clinician or anyone else's interpretation. The UKRR collects PROMS about symptom burden (14 symptoms rated from not at all to overwhelming) and quality of life.

The UKRR uses the paper-based Your Health Survey to collect PROM and PAM data. Data collected include renal unit, treatment modality, sex, ethnicity, patient name/NHS number/postcode and date of birth, health literacy, EQ5D-5L (quality of life measure), POS-S Renal (symptom burden measure) and PAM (knowledge, skills and confidence in self-management).

Data are collected intermittently when required by a renal centre and are reported to patients via PatientView

In 2016-2017, over 3,000 Your Health Surveys were collected by the UKRR as part of the quality improvement project 'Transforming Participation in Chronic Kidney Disease'.

Guidelines

NICE accredited clinical practice guidelines 

Available here

22nd Annual Report

Analyses about care provided to patients at UK renal centres.

Read the report

UKRR AKI Report

A report on the nationwide collection of AKI warning test scores. 

Read the report